STANANDLOU MARKETING/ADVERTISING

A producer from a U.K. production company, Darlow Smithson, came to town today to begin shooting a documentary about neurofibromatosis. They will be taping Reggie for the next seven days in Houston and Salk Lake City, Utah, along with a fellow NF’er, Maurice. Today, they shot Reggie at home getting ready for his trip to Utah, i.e., ironing, packing, talking about the trip with his mother, Dorothy, and basically documenting a day in the life of Reggie, a guy with NF. PHOTOS

Our friends, William Hughes and Matt Jones, produced this amazing video to honor Reggie and to help in his mission to spread awareness of neurofibromatosis.

It’s that time again. National Doodle Day. This is the 3rd year that I happy to help with getting the word out about doodle day. A few of my friends, Kevin Nealon,and some of Kevin’s friends gave turned in doodles. Also my friend Sugar Ray Leonard helped again this year as well. To make sure all the information is correct, I have all the information from the website. I’m happy to do my part by passing information to you.

- Reggie Bibbs

PHOTOS
Note from Reggie:
“Thought things couldn’t get any better. I found out yesterday things can always get better, Even though you are happy with the way things are going for you now. I Meet a lot of nice people in Austin. Our Austin friends are learning about neurofibromatosis and showing compassion about all who are affected by NF. Shouldn’t surprise me. I always walk away feeling great, as I know the new friends I met feel the same. A big thank you to all who took time to take photos with me! You are all very special to me!”

This year Camp For All, was more then words can discribe. Thank goodness for the rain, yes a rainy camp weekend. We had a great time. No there was no mud wrestling, all though all of the ellemants was there to have a few matches. We discided to meet our new commers to camp this year. It was nice meeting friends that I talk to on FaceBook, and finnally meeting them at camp. Also It was nice meting our friends who we see every year was a blast as well. Plese new commers join in the blog and talk about camp. Remember to tag your photos on facebook so everyone will know who you are. Maybe we can encourage more to join us next year. Thanks Texas NF Foundation for making Camp a time to remember.

-Reggie Bibbs

PHOTOS

A friend of mine and Reggie Bibbs, Jason McElweenie, submitted Reggie’s name to host a panel for next years SXSW: “Becoming An Inspiration – One Pixel At A Time” http://panelpicker.sxsw.com/ideas/view/2339

The description is as follows:

Reggie Bibbs has been on a one man crusade to raise awareness for neurofibromatosis (NF) come listen to him tell his story and help you and your organization turn your clients and friends into raving fans for your company or group

A little refresher on how this works; This is a 3 step process. A panel is submitted and then placed in the PanelPicker where the public comments and votes on it. After the voting and commenting is done a group of SXSW insiders vote on which ones they like and the board at SXSW also votes on which one they like. If the public comments and votes a lot for this one we have a chance of swaying the other two parts of the in our favor so now we have to promote, promote, promote.

I hope this can further raise awareness for Reggie and NF, speaking to a crowd of early adopters can do nothing but help raise awareness. If this panel is selected I say we plan a sort of media blitz to make Reggie the unsung hero or face of the 2010 SXSW conference. First thing we need to do for Reggie is get him on Twitter I have registered his name http://www.twitter.com/reggiebibb

Can you send the PanelPicker link above to everyone you know and ask them to not only comment but also vote for the panel?

This would be an incredible experience for Reggie as well as a great boost to his mission to spread the word about neurofibromatosis.

If you could take a few minutes to help, it would mean the world to me and Reggie!

Thank you,

Lou

I had a terrific meeting with Congresswoman Sheila Jackson Lee this morning!

Joining me at the Mickey Leeland Federal Building in downtown Houston this morning were Drs.Bart Moore and John Slopis from M.D. Andersen Cancer Center; Sandra Parker and her daughter, Emily,  Lou and myself. Sandra is a consumer reviewer for the research integration panel for the Department of Defense. She helps decide which NF research projects get funded based on consumer need and importance.

Congresswomen Jackson took time to meet with us even though she was hard-pressed for time having to fly back to Washington immediately after our meeting. I have to say she was great! She remembered me from a NF function years ago and was genuinely interested in everything we had to say. She seemed quite interested in our story (Emily’s and mine) and after getting all the information she needed,  told us that she would sign the petition to fund research for neurofibromatosis.

Congresswoman Lee also recommended other possible sources of funding that we should be aware of through the government. She will be signing on to keep funding research that will help neurofibromatosis, as well as other types of disorders that could lead to cancer. Everyone should be happy about that has happen today. All of us can benefit from this funding and from the wise support and leadership of Sheila Jackson Lee!         – Reggie

Saturday night, Feb 21, 2009, was the 47th Annual Houston ADDY awards. It was the night of the stars. The American Advertising Federation honored Lou’s former boss, Don Brown, of Taylor Brown & Barnhill, while Only In Houston honored Steve Farrell, of Radio Music Theater, who is also one of the funniest guys I have ever seen. I met him after the ADDYs when Lou and I went to the theatre to present him with his award.  Steve is a great man and I was proud to meet him and his family.

But wait,  there were more winners Saturday night!

STANANDLOU and I won two gold ADDYs, one silver ADDY, and a Special Judges Award for Public Service Advertising for our new “Just Ask! ads! . That was a total surprise to me. I’m thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about nf as we keep pushing forward. Thank you all for supporting the site with your visits.  SEE ALL THE ADS HERE.

- Reggie Bibbs